General Practice Data for Planning and Research Data Collection (GPDfPR)
As you may be aware there is a lot of media attention and public uncertainty regarding what the National Data Opt-Out is and how you protect your data. We have included the below information to try and give you the correct information to make an informed choice. There are 2 key Opt-Out decisions patients need to consider, the first is the Type 1 Opt-Out which is managed via the GP surgeries and the second is the National Type 2 Opt-Out which is managed by NHS Digital, this is not managed via us.
As well as using your information to support the delivery of care to you, your data may be used by NHS Digital to help improve the way health and social care is delivered to patients and service users throughout England. From the 1st September 2021, NHS Digital will securely extract your information to provide access to patient data to the NHS and other organisations who need to use it, to improve health and social care for everyone.
NHS Digital will primarily use your information in a way that does not identify you (your information will be pseudonymised). However, they will be able to use their software to identify you in certain circumstances, and where there is a valid legal reason to do so. NHS Digital may also share your information with third parties such as Local Authorities, primary care networks ((PCNs), clinical commissioning groups (CCGs), research organisations, including universities, and pharmaceutical companies. For more information about GPDfPR please visit NHS Digital.
If you already have a Type 1 Opt-Out in place you will not need to resubmit the forms.
Patient data from GP medical records kept by GP practices in England is used every day to improve health, care and services through planning and research, helping to find better treatments and improve patient care. The NHS is introducing an improved way to share this information – called the General Practice Data for Planning and Research data collection.
NHS Digital will collect, analyse, publish and share this patient data to improve health and care services for everyone. This includes:
- informing and developing health and social care policy
- planning and commissioning health and care services
- taking steps to protect public health (including managing and monitoring the coronavirus pandemic)
- in exceptional circumstances, providing you with individual care
- enabling healthcare and scientific research
Any data that NHS Digital collects will only be used for health and care purposes. It is never shared with marketing or insurance companies.
As a patients, you have the right to opt out of your data being used in this way. this collection will start on 1st September 2021.
If you do not want your patient data shared with NHS Digital, you can register a Type 1 Opt-Out with us. You can register a Type 1 Opt-Out at any time. You can also change your mind at any time and withdraw a Type 1 Opt-Out.
If you wish to register a Type 1 Opt-Out with your GP practice before data sharing starts with NHS Digital, this should be done by returning this form to us as soon as possible to allow time for processing it. If you have previously registered a Type 1 Opt-out and you would like to withdraw this, you can also use the form to do this. You can send the form back to us by post, by hand or by email to d-ccg.EnquiriesBrannam@nhs.net. You can call 0300 303 5678 for a form to be sent out to you.
If you register a Type 1 Opt-out after your patient data has already been shared with NHS Digital, no more of your data will be shared with NHS Digital. NHS Digital will however still hold the patient data which was shared with us before you registered the Type 1 Opt-Out.
If you do not want NHS Digital to share your identifiable patient data with anyone else for purposes beyond your own care, then you can also register a National Data Opt-out (also known as Type 2 Opt-Out).
What do you need to do?
If you are happy for your data to be shared as above, and haven’t previously Opt’d out – you do not need to do anything.
Type 1 OPT-OUT – to stop sharing your details with NHS digital (or to opt back in, if you have previous opt’d out)
Complete this form OPT OUT FORM (or you can complete this to opt back in)
If you are not able to complete this form, call 0300 303 5678 for a form to be posted to you or come into the practice and we can give you a copy to complete.
- Hand the form into reception
- post it to us at: Brannam Medical Centre, Kiln Lane, Barnstaple, Devon EX32 8GP
- or email it to us at: d-ccg.EnquiriesBrannam@nhs.net
Type 2 OPT-OUT (Also known as National Data Opt-out) – If you do not want NHS Digital to share your patient data with anyone else for purposes beyond your own care, which has been already shared with them (or to opt back in, if you have previous opt’d out)
NOTE: You can only do this via the following ways – as a GP practice we cannot opt you out of Type 2 (National Data Opt-out)
You need to, either;
- Call 0300 303 5678
- complete the online form via YOUR NHS MATTERS
- or, submit your sharing preference on the NHS APP
Data Sharing that may occur as a result of COVID-19
The Practice may collect, hold and share information about you in relation to the COVID-19 pandemic in order to plan and manage services, check that care is being provided and prevent COVID-19 from spreading.
Information about your COVID-19 status may be shared within the NHS and with other partners involved in your care and treatment, along with:
- NHS England,
- NHS Digital,
- Public Health England,
- The Department of Health,
- Other Government Departments where it's legally required, or where it is necessary for the protection of public health or management of the outbreak.
We do not need your consent or agreement to do this.
More information can be found at: https://digital.nhs.uk/news-and-events/latest-news/data-and-services-supporting-coronavirus and https://www.gov.uk/guidance/notifiable-diseases-and-causative-organisms-how-to-report
This practice is supporting vital coronavirus (COVID-19) planning and research by sharing your data with NHS Digital. For more information please click on the following link:
General Practice Transparency Notice for GPES Data for Pandemic Planning and Research
Data Provision Notice - GPES Data for Pandemic Planning & Research (COVID-19)
We will be making some changes to how we share data, this will only be within the Barnstaple Alliance and will take effect from 29th March. For more information please read the letter attached below.
Patient Letter - Record Sharing
From May 25, 2018, the new mutually agreed European General Data Protection Regulation (GDPR) came into force. Strict rules mean companies will not be allowed to collect and use personal information without the person's consent. Here are the links to our privacy notices to give you more information on what we do with your information.
How we use your information for clinical care
How we use your information for medical research
How we use your information for medical screening programmes
How we use your information for legal purposes
How the NHS uses your information and Opting out
Data Provision Notice - Physical Health Checks for people with Severe Mental Illness (PHSMI)
Data protection queries can be raised directly with the Practice Manager at Brannam Medical Centre or the appointed Data Protection Officer for Devon.
Bex Lovewell, Data Protection Officer
Delt Shared Services Ltd., BUILDING 2 - DELT, Derriford Business Park, Plymouth, PL6 5QZ
Sharing in and out policy documents
Fair Processing Notice
Sharing Policy Wording